Tuesday, June 28, 2011

And So It Begins...

I'm sitting here fighting tears.  My heart is in my throat.  I feel like there's not enough air in the room.  I can't get a deep enough breath.  I just want to start sobbing.  You know, just get it out.  But my make-up will run and I'm at work.  I should be working, not weeping over something as predictable and silly as this.

I just realized I've got practically no time left.  No, nothing as dramatic as my health or anyone else's.  Nothing dramatic at all.  It's just my little girl ... my baby ... grew up.  Somehow in one fell and extremely sudden swoop she's happy away from me - all day!  Yesterday was her first day at camp - at the Arts Camp that Laura runs - and she loved it.  No, she didn't just love it - she LOVED it.  She loved it so much she put herself early to bed last night and got herself up early this morning to be sure she got there on time.  She voiced her concern, as we got ourselves dressed and ready, that I wouldn't have a full day's worth of work to do today and might come pick her up early.   

With this, I know she can handle school in the fall.  We are on a (long) waiting list for our first pick, which is a 3 hour Kindergarten, so I called up our second choice - a full day deal.  They were fine with me registering her for the fall.  "When do classes begin?" I asked.  "August 29th."  and with that, my stomach twisted and the tears began winning the battle.

How many times have I complained that I can't just go on a run?  Or read the newspaper?  Or watch a movie before midnight?  Or had the time to go window shopping?  How many times have I lamented the lack of "me time?"  Soon, I'll have more "me time" than "me" will know what to do with.  Granted, while she's at school, I will most likely be working and ... with things topsy turvey at work too, who knows if that'll be from home or in-person ... but STILL.  I've got 6 Thursdays left with her this summer (my weekday off).  SIX!!!  (No, no, no, don't you cry Katie...)  Well, there are actually eight left but she's in camp for two more weeks in August and I know she won't let me renegotiate that deal.  So, six.

I have two mini vacations I want to take with her and now I have to figure out how to jam them in to the few weeks I have left before 'real life' takes over.  The money that I don't have seems less important now... the time and attention seems to be weighing over the budgetary restrictions.

I suppose one could think I'm being melodramatic but there's no way I'll give anyone that.  Of course this isn't my first time at this.  I'm no rookie here.  I can tell you with authority that while life can move at a snail's pace for me, it careens by on a SR-71 Blackbird for the kids.  Tim and Cheyanne grew up in - oh, I don't know - two or three months?

And while I can also tell you there's not an age I didn't love and there hasn't been a moment in time when I'd have traded their current age with one prior (no, Chey, not even at 9)... the growing up of this particular child is really hard to take.  There's no chance for another.  This is it.  The finale.  I don't get my miracle again ten years from now.  When she grows up and leaves the nest, it will be empty.  It will be very, very empty.

On Tim's graduation night, my 38th birthday coincidentally, I couldn't sleep.  I ended up sobbing on the couch at some ridiculous o'clock like two or such.  It was Cheyanne that came down to console me that night.  It was a moment so similar to this one.  "It's about to be over."  I sobbed to my (now) eldest daughter.  "I know you haven't even graduated yet, but it goes so freaking fast and it's going to be over in no time.  What am I supposed to do with myself then?"  I asked her sort of hypothetically.  She assured me that no one was going anywhere, that I'd still be mom, that we'd still be a family, that no family was as closely knit as ours.  "Don't worry Mom" she said.  "It's going to be fine."

I know she was right.  Even though God smiled on my pathetic face and gave me Dia, in no way have my precious first two moved on away from me.  They are still very much in my daily life.  Everything is OK just as Chey predicted.

Still.  Even though I have a few minutes before I have to figure out what I'm supposed to do with myself once Dia is grown, the fact of the matter is I don't want to do anything else.  I really like being a mom.  I like playing Polly Pockets with pirates and dinosaurs (all at once).  I like reading stories and cuddling on the couch watching movies I don't even necessarily like.  I love watching her, still awkward and tentative, taking a step further every day in swim class.  I love the funny way she runs and how she makes me make up the most insane stories (on the way to camp today she hit me with "tell me a story about an egg (with a chick inside), a salmon and a bacon fish").  I love every part of this part of life and I don't look forward to it's end.

Dr Seuss (I think) said "Don't cry because it's over, smile because it happened."  I'll try doc, but I'm not promising anything.

Tuesday, June 7, 2011

It's Not Broken

Some of you know that Dia has issues with her blood sugar levels.  It's pretty serious some days but there are other days, when we've got the whole diet figured out to a science for a week or so, where I can get lulled into a sense of denial and convince myself she's cured. When her body proves to me otherwise and I have the horrible and often painful wake-up call that she has not, actually, miraculously outgrown this, I always have a sense of grief about it.  I wish so much for her that she could just be like other kids.

But because my God is particularly humbling, He has provided me with friends who can't ever lull themselves into such a state of pure unadulterated denial even temporarily.  Their children's conditions are not ever going to give them that luxury.   On the days when I'm feeling sad for Dia (or for me) I'm often provided the reality check that we don't actually have a very big challenge to face after all.

Sabra is one of these parents and she has a wonderful blog that I've mentioned before and that you really should follow if you aren't already. In a late April entry, she shared something Emma, her daughter, said about autism awareness "...yearn to understand that everyone with this reality is exactly who they are supposed to be."

I have Louise Hay's book on healing. Dia likes me to look up whatever hurts her and then she determines if the reason is what Louise Hay suggests (so, for instance, if her tummy is bothering her it might be due to fear of the new) and if Dia agrees that's what is going on, she takes a deep breath and says the meditation that goes along (again, for instance, "Life agrees with me. The universe holds my best interest at heart.").

Not long ago she had a bunch of aches and pains and we were going through the book, per her request. She had also gone high that day (sugars), so I took it upon myself to read her that one. Do you know what she said?

"I don't want to change that. My sugar problems are part of who I am. That doesn't need to be fixed because it's not broken, it's just different."

I didn't follow why she actually wanted this condition of hers and so I asked her if maybe it was because she liked having to have sugar sometimes.  (She gets candy or sweets periodically throughout the day when her sugars drop low.)

"No" she answered "not really.  But if that got fixed I wouldn't be me."

Huh. Who knew?

So I figure maybe these 'special' kids are - as Sabra so gorgeously described it - fearfully and wonderfully created by God just as He designed. Maybe we are even a little arrogant in thinking that they would rather be like the other kids as opposed to merely having the other kids accept them as they are.  And truth be told?  I don't think that's unique to them - I think every one of us would like to be accepted exactly as we are too.

KEC